Resource Directory

Support Programs

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Programs and associations promoting research and  fostering support, education, information, referrals and advocacy for caregivers, patients and their families.

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Research Facilities

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Organizations addressing research challenges that will shape the future of healthcare and bring novel and innovative therapies to the point of patient care.

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Clinical Trials

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ClinicalTrials.gov provides patients, their family members, and the public with easy and free access to information on clinical studies for a wide range of diseases and conditions. 

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Support Programs

Research Facilities

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